First let me apologize for worrying everyone by not updating the blog. I was having some computer problems. I'm ok.
Ciara is doing well today weighing in at 1lb 11oz! She has had a couple of trying days. Friday Corey came with me to visit her and he finally got to experience kangaroo care. Ciara just stared at him the entire hour. I said either she was thinking "I love daddy" or "What is that!" He really enjoyed holding her and it was just as gratifying for me to see. She seemed to tolerate her session well. On Saturday I went to visit her and her heart rate was high. It was ranging in the low 200's. She also had a crying episode while I was there and her heart rate went high and her saturation went in the high 60's. She finally calmed down when I put my hand on her back and read her a story. But she had this fit for about 20 minutes. It was really upsetting for me to see her like this and not be able to control it. Then after this fit she had several apnea (when she stops breathing) episodes. The nurse told me it was normal for her to have them because they stopped giving her caffeine thinking that it was making her heart rate go up. I visited with her some more and made sure she was ok and then headed home. I was upset about her so I did cry on the way home. I thought and worried about her all evening and this morning. Well you must have been able to see the worry on my face because the doctor asked me what was wrong. He then sat with me for quite a while and explained the possibilities of why her heart rate is up. It is possible that she is uncomfortable on the CPAP machine, or that the ductus has opened back up, an infection, or that she is just having arrhythmia's. He continued to come back to Ciara's bed to make sure I was ok. He did call me a "high maintenance mom" and told me I worry too much. I know he told me not to worry unless he is worried but it is very hard for me not to worry. He is a very nice doctor and he is doing wonderful things for Ciara. I will try not to be such a worrier. Today was a much better day for her and she didn't trip the monitors at all while I was visiting. Right before we left today they switched her from CPAP to the nasal cannula oxygen to see if that would bring down her heart rate. It is possible that she was getting aggravated with the mask being on her face. We will see in the morning. Please continue to pray for her strength and for mine.
P.S. There must be a problem with the site this evening I couldn't load any pictures. I will try tomorrow.
Hi Tiffany and Corey,
ReplyDeleteMy mom, Aunt Vira, gave me your website and I'm trying to get caught up on your lives with new, little Ciara. She's such a precious gift from God and He's there to take care of her and you all, so the doc's right, quit worrying. Yah, easy for me to say. Lol. We're so happy for you all and wanted you to know that sweet Ciara is in our prayers and I'll pass the website on to others I know who will keep her in their prayers.
Love and God Bless, Tammie & Keith